I had an unexpected cystic fibrosis diagnosis at 31 and later learned that both of my children had CFTR-related disorder. What carried us through was individualized care and the unwavering support of ...

After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point — turning my struggle into resilience and my passion into purpose.

Watching my son struggle without access to his CF medication was heartbreaking. But the hope that came when our community rallied behind us is something I’ll never forget.

I used to measure my life with cystic fibrosis and CF–related diabetes (CFRD) in numbers. Lung function. A1C. Blood sugars. Weight. Enzymes. Appointments. I learned early on that survival meant ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...

I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned. During the 18 months I spent waiting for a ...

Growing up with cystic fibrosis made me stubborn and determined to accomplish everything that I was told I could not do. At my elementary school track and field day, I would make sure to always choose ...

It was the spring of 2008 when my world flipped upside down. I was 13 years old and just finishing up the 8th grade. I felt like a relatively “normal” kid, despite being diagnosed with cystic fibrosis ...