Patient Advocacy Initiative staff speak on Notre Dame’s Rare Disease Day event and impact for the rare disease community.
This World Rare Disease Day, as we celebrate the victories of brave young souls and their families, let us rally together, reiterating the message that every life, no matter how rare, is extraordinary ...
MUHIMBILI National Hospital (MNH) executive director, Prof Mohamed Janabi has emphasised the need for greater public awareness on rare diseases to help communities understand the challenges faced by ...
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Rare Disease Day: Richmond mother turns grief into advocacy after losing son to rare diseaseDonna Reynolds of Richmond knows all too well the devastating toll that a rare disease can take, not just on an individual, ...
VIJAYAWADA: The Indian Organization for Rare Diseases (IORD) hosted the Raise the Awareness - Rare Diseases conference in ...
A mother has opened up about the harrowing struggle her daughter endures with a rare illness that triggers uncontrollable ...
Juliet Lawrence is raising awareness about cyclical vomiting syndrome which causes severe episodes of sickness ...
For the first time, Hospital Kuala Lumpur (HKL) is proudly hosting the annual Rare Disease Day 2025 celebration to raise ...
The last day of February is Rare Disease Day, and one Union County group wanted to shine a light on those living with rare ...
MADISON, Wis. (WIFR) - For 14 years, Treyson Wallace’s family searched for answers. Born in 2009, Treyson failed a newborn ...
The ministry of health will provide services to patients who are suffering from hard-to-treat and rare diseases during the ...
Holly Helm’s life changed forever. “It was like life changed within a blink of an eye,” she explained. “I was completely ...
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