National Organization for Rare Disorders | NORD
Dec 18, 2025 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. …
Centers of Excellence - National Organization for Rare Disorders
NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …
NORD Rare Disease Videos | Informational Videos About Rare Diseases
The NORD Rare Disease Video Library houses educational videos on rare diseases for patients, caregivers, students, professionals and the public. NORD works with medical experts and patient …
What You Should Know About Undiagnosed Rare Diseases | NORD
NORD strongly recommends discussing options to participate in research with your doctor. Research can help identify new diseases, expand our understanding of known diseases, and potentially …
NORD Rare Disease Day | Official US Partner
The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.
Patient Assistance Programs - National Organization for Rare Disorders
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial …
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Pontocerebellar Hypoplasia - Symptoms, Causes, Treatment | NORD
Jul 18, 2025 · Learn about Pontocerebellar Hypoplasia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find
Rare Disease News - National Organization for Rare Disorders
Dec 18, 2025 · Stay informed with the latest rare disease research, breakthrough treatments, and patient stories from NORD's expert team of medical professionals.
Pfeiffer Syndrome - Symptoms, Causes, Treatment | NORD
Jul 25, 2023 · Learn about Pfeiffer Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources